Wishful Angels

In Sickness and in Health…A blog for grieving spouses

The tale of my life

Of songs I have sung and books I have written
secrets I’ve kept and sins half forgiven
There’s one book left
I’m afraid to write
One book to tell
the tale of my life

It starts with a child who would sing at play
before sadness came and stole her away
Into a woman she grew
with deep lost eyes
That search for joy
in the tale of her life

Many nights I have spent in the arms of men
burning in the hell of a heart bereft
But for one did I fall
and become a wife
Now that chapter is closed in
the tale of my life

With duty you bound me tighter than blood
chained to your ring till I bled for love
I tried to save you
I would have given my life
Though gone, I’ll not forget
the tale of your life

There are nights when I’ve cried myself to sleep
tortured by memories that force me to weep
What haunts me a ghost
who will not die
Who fills each page with
regrets of my life

As I walk by the sea the ocean whispers to me
of it’s power to heal and set me free
From the pain of your death
that I’ve learned to survive
With the strength of sorrow
I will live my life

When the frosted earth gives way to summer’s blaze
and dreamers awake from somnambulant daze
I lie with you
in the morning light
And pledge my debt
for saving my life

There are years I’ve spent mourning for those I have lost
and healed with time while weighing the cost
I look to the east
for the sun to rise
And count what remains of
the days of my life

Where’s the mercy of God in all I have seen
will you kindly reveal this mystery to me
Of where I will go and
when I will die
By His hand is written
the tale of my life

The passage of grief…

Sealed in a room
I think I see light,
and if I dare to look
hope may arise,
But there is no place for hope
when I live sealed in a room.

I came in here one day
sometime after you left,
When laughter drained from the world
and I fell deaf,
And dumb and blind and withered
from grief.

This room is safe
for it is I alone
in these 4 walls,
A home made of sorrow that is known
and preferred to the unknown.

How long can I stay you ask?
for as long as it takes
I’m in no rush,
I keep company with pain
and while he’s no jolly friend
no more will I gain.

Seasons have passed
while I’ve stayed in this room,
the walls once strong have become paper thin,
With no place to hide
from the beckoning sun,
In the distance, I hear children sing.

Where once was a wall
has appeared a door,
To my friend I ask, what lies beyond?
More pain perhaps, more love I hope,
Alas, certainty flirts from a distant shore.
In life is death, with love comes sorrow,
accept one and the other must follow.

Take courage now, this time you choose
knowing all there is to lose,
There are others who are sealed in little rooms
lost to themselves but not to you,
Be brave for them, live again,
show them that the darkness ends.

taruni

There is a plan…

 

 

As a child, I was irrationally afraid that my mom, dad and brother were going to die. I didn’t know at the time what caused this fear but now, I believe it was a foreshadowing of things to come.

I remember, at the age of five, lying awake at night, listening anxiously to my father’s loud snoring as he lay on the couch, having fallen asleep in front of the TV. Whenever his snoring would stop, I would be gripped with fear that he had died. Sometimes, it was only seconds, sometimes minutes before he would start to snore again and I would be relieved, until he stopped again. Night after night, I listened with increasing terror for hours until finally, the anxiety would force me to creep out of bed, sneak into the lounge room, position myself behind a wooden partition and watch him sleeping until I was reassured that he was not in mortal danger. Somehow, the act of watching, calmed me enough to be able to go back to bed and fall asleep, exhausted. There were other occasions, when my mom was late home from work and once when my brother was returning home after being overseas for a year and arrived hours after he was due, that I waited fearfully, convinced that they had died en route.

I stopped being fearful for my mom and brother, those fear ridden nights eventually stopped happening and I forgot about it all, until Jp’s illness. One night, not long after he had been diagnosed, I woke suddenly, in a state of panic. Confused and fearful, I immediately sat up and peered anxiously in the dark at Jp, thinking that something must be wrong with him. Frantically listening for the sound of his breathing and watching for chest movement, I realized after a few seconds that he was actually sleeping peacefully. Laying back down with relief, I breathed deeply and waited for the panic to subside when a sudden image of my five-year-old self resurrected in my mind’s eye. As if it was scene from a movie, I watched myself, staring with fear at my dad while he slept, haunted by a reality that I didn’t know would manifest, thirty years later. I started to understand then, that I had been preparing for death my whole life.

As part of my College degree, I was daily, in the company of people who were elderly, sick and dying. Course placements meant that I spent my afternoons with frail, ailing and dying men and women, either in palliative care facilities or nursing homes. At the end of each day, I wondered as I solemnly drove home, how I came to be surrounded in my late teens, by the sick and dying and how strangely privileged I was to be witnessing the last stages of life in all it’s painful and unpleasant reality and hear the realizations of those who were dying. After years of working as a music therapist, death, old age and illness became very familiar to me and with it, an increased appreciation for the time I still had to live. I consider myself blessed to have had the chance to ponder life and death almost daily and to become comfortable with the dying process. It is a priceless gift for the living, to sojourn even for a moment with the dying, for mortality awakens one to live with greater purpose and clarity.

Reflecting back on all the different phases of my life which grew out of seemingly disconnected opportunities that led to a disparate range of careers – violinist, therapist, chef/restaurateur, yogi – I’m starting to make sense of it with hindsight. I see now, that every opportunity and subsequent phase, led me to acquire new skills and exposed me to new experiences to broaden my understanding of life and humanity. Being a concert violinist taught me mental and physical discipline, being a therapist taught me how to care and heal, being a chef and restaurateur taught me to be resourceful, organized and a leader and being a yogi, has taught me how to be courageous and to serve.

All of these skills were necessary for me to play the most important role of my life so far, as Jp’s carer. More lonely and frightened than I had ever felt in my life, resources became available as I searched and prayed for guidance and strength. I found the confidence to stay calm in the worst moments as I struggled to care for my beloved Jp and the mental stamina to carry us both through fear and the unknown. But, there were many challenges for which I did not have the skills and it will be in this next phase of life that I will have to develop them.

What tests lie ahead I do not know. But if I were to admit to any faith at all, it would be that I increasingly sense a Divine orchestration of my life and though I do not know what the future holds, history has proven that I will have what it takes to meet it. More than any material security, I am greatly comforted by the knowledge that purpose and meaning will be revealed in time if I can be patient and surrender to everything this present moment has to teach me.

 

taruni

Self Honesty

 

A few nights ago, I was reading wiki entries and online case studies by hospice nurses, doctors and caregivers about ‘the signs of dying’ for a new blog I wanted to write. Strangely, it hadn’t occurred to me to look these up when Jp was diagnosed, not even during his final days, so as each bullet point list on the ‘symptoms of dying’ appeared and repeated itself, I was surprised, dismayed and increasingly horrified to recognize almost all of the identified symptoms. As I continued to read with increasing discomfort, a question started reverberating in my head – Why hadn’t I looked them up when Jp was dying?

Within minutes, my mind was roiling in turmoil as dozens of questions erupted – Why hadn’t I accepted that Jp was entering his final days with us? How had I misinterpreted the observations of the hospice nurses? Why hadn’t anyone seen that I was in denial and helped me face to the truth? Were they afraid I couldn’t handle it? Were they afraid to upset me? Was I really in denial when I carefully explained to visitors that even though I was still administering healing herbs, it was likely that they weren’t going to save him? What the hell was I thinking? Questions I should have asked 3 years ago multiplied like rabid dogs feeding on resurrected guilt and self-recrimination.

At first I couldn’t get past the dismay for inflicting Jp with unnecessary measures to save his life. I felt ashamed thinking that his family, our physicians and friends must have felt helpless to make suggestions. Travelling back in time in my mind’s eye I recall seeing the hesitation in their eyes as I requested life saving measures for someone clearly hours from death. I know they acquiesced to my demands out of love and compassion but I wish they hadn’t.

After the negative emotional fervour subsided, a new question emerged. What precipitates clarity when you’re drowning in self-deception? How do you get help when you can’t see what’s wrong? Is there a courageous friend, respected mentor, loved one who will show us the way? I thank God that inspite of the massive denial and my rejection of reality, there was one person who tried to reason with me. One dear friend to whom Jp somehow knew to ask to especially support me when he was gone. He entrusted her with my sanity and she would be the one to shake me out of illusion the morning Jp passed and tell me it was time to say good-bye – to tell me that he was waiting for my permission to leave and that IT WAS TIME. In her insistant command, I found the courage to face the truth and say good-bye to my best friend and lover, transforming our last moments together into a transcendent exchange of  love and surrender.

These questions and many more that I’m wrestling with now make me squirm with discomfort, pain and self loathing and although I’m fairly sure there isn’t an answer to any of my questions, I want to develop the habit of incessant questioning because it seems the best way for me to avoid self-deception. By continuously enquiring, I can uncover biases, fears, misconceptions and erroneous thought patterns. I’m learning to attend to the vague messages and warnings submitted by my oft-ignored intuition and investigate the many elusive suspicions that skirt the periphery of my attention.

I am enrolling my consciousness in self-honesty boot camp where intellect and determination perform as a drill sergeant under whose fearsome gaze, the dark corners of the mind will be swept clean and I will be able to see things as they are and be guided by Divine influence to make superior decisions in the future.

taruni

Longing…

I’m not sure when I stopped missing my husband. I suppose familiarity crept in after 7 years together and I rarely felt the pining, agitated pain of separation that I relished in the early days of our passionate love.

Running our restaurant from waking to sleep, 6 days a week meant that we were rarely apart. So JP had become as familiar to me as my 4 limbs, an essential part of my body that I neither missed nor noticed as long as it was executing its functions.

At first I congratulated myself for reaching this mature phase of our relationship, free from the giddying peaks and troughs of new love. I appreciated the emotional equilibrium and the predictable dialogue we exchanged distractedly during our busy days. But a quiet, niggling part of my mind started to suggest that something bad would germinate from the economy of attention I gave to JP and our marriage. While there was truth in this, I didn’t enact change because I thought the worst thing would be separation, unlikely to happen because we were happy and I still loved him deeply albeit passively. Looking back I believe this voice was warning of the days to come and so it was that we were deafened 3 years later by the ferocious howl of a brain tumour.

Glioblastoma Multiforme is an impressive tumour. Its microscopic cells infiltrate the tiny pathways between the brain matter and despite 20 hour surgeries to remove visible cells, they hide, escape and grow back to kill their victims eventually. The oncologist didn’t say terminal during our first consultation but I wish he had, it would have placed boundaries on my fervant optimism.

Ironically, that tumour propelled my stagnating love to heights I’m certain I couldn’t have reached without it, instantly curing my emotional lethargy. The fear of losing JP produced raw vulnerability, as fearsome a monster as the tumour, exposing every moment to interrogation by stark emotional reality. I ached with pity for JP’s suffering and clung to every moment that time wrenched out of our grasp. I fixated on finding positive outcomes, I wanted cures, treatments and reassurances. JP’s disappearing future elevated every desire beyond the realms of normal longing into tortured helplessness and if I had coalesced the complex maze of outcomes and answers I was chasing into one unifying desire, it was that I wanted more time.

Before the tumour I didn’t know what to do with nor did I contemplate the time I assumed we had. There was just endless time with no urgency to respect or cherish it. The tumour changed this, eliciting panic and anxiety but also heightened commitment and attentiveness. It dropped a steady anchor that pulled me back to the present to breathe in JP’s existence and save it up to sustain me for the rest of my life.

Shrinking time transformed my marriage and even though JP passed away, I can’t be angry or saddened that the results weren’t different. Because he left, I couldn’t fall back into a state of indifference. I will always miss and long for him. The memory of our intense love during those last few years is never tainted nor satiated so it is preserved and alive in me.

I keep vigilant however to escape the trap of longing for outcomes and guarantees because I want to embrace longing without the outcome. I’ve made friends with unpredictability and I’m at peace with missing JP. I don’t want that longing to go away even though it hurts. I’ve learned that in loving this longing a thousand futures revealing a million opportunities beckon and all can be embraced reverently because the aim is not to fulfill any of them but to experience the journey on which you travel to discover their end.

Missing JP is exquisitely painful, but as I continue to endure it’s solemn power it reveals gleaming sparks of ecstatic spiritual longing that lead to transcendence and in such moments, I taste in longing, the essence of God.

taruni

Angels above…

Do you see
the darkness in my soul?
Then you’ll understand
why I do not dream,
why I’m not free
and only partially whole

I’m mad in a way,
I think of death
more than life,
I was a wife
and now I grieve
for the one who left

From across the great ocean
you saw my face,
Who can say
why you were chosen
to take his place
and bid me welcome

If I appear ungrateful
and sadness remains,
Forgive me, I’ll laugh in time
and heal the pain if you
remind me please
that it’s not in vain

Carry me this night
away from sorrow,
Spin me a tale
that I can follow
Thru’ cold wind and fog
into a new tomorrow

Embrace me close
and sing to me,
That we’ll grow old
so I can believe, and
Make me a promise
that you’ll never leave

I’ll be yours forever
I’ll take your pain,
your name,
your best and worst,
And love you freely
forgetting life’s curse

Angels up there if you are watching,
Listen close and spread your wings,
For I will sing to you of wondrous love
and forget for a moment the one above,
Angels spread your wings,
fly us home when our time comes.

taruni

In support of the dying

What meaningful encouragement can be given to someone who is dying?

Theirs is a lonely journey; to be moving towards the separation and end of all things known and loved.

Being with a dying person is challenging; it penetrates through discomfort seeking honesty and courage. It brings you confrontationally into the present which is shocking for many. But if you spend time with the dying you’ll find that their needs are not so different from ours, only they have a limited time to fulfill them.

A dying person needs to be heard, comforted and forgiven. A dying person yearns to connect with the world they are leaving behind. A dying person needs to make peace with the life they have lived. A dying person needs to be encouraged and allowed to say good-bye. If we while living, could be mindful of all that we will inevitably wish to have fulfilled when our time comes, dying would not be so difficult. The more we contemplate dying, the easier it is to be ready to die.

Supporting my husband while he was dying was terrifying at first. I was always anxious from the uncertainty and exhausted from having too many responsibilities. I felt trapped in a bubble with no future; I wasn’t dying or living, just ‘on hold’ waiting for the end. Staying positive and alert became my new occupation. But, somehow I got used to it. I stopped feeling helpless and learned how to become attentive to JP’s every need. Somehow he was so grateful for every little thing I did that I thought he was comforted to be going through it together. The truth is, dying people travel towards death alone and with each breath almost imperceptibly, they move out of your reach leaving you behind.

JP lived every day knowing how he wanted to die; serving others and conscious of the Divine. Since he was already doing both, he wasn’t caught off guard when the diagnosis came. He simply looked at me and said, “I just wish I didn’t have to leave you yet”. For years he had been developing a spiritual compass which now guided and helped him to navigate the challenges of cancer treatment, pain and physical deterioration. Knowing he had incurable brain cancer drove him to dive deeper into his meditation and spiritual practices and accelerated his determination to be poised mentally and emotionally to pass gracefully from this world.

There were often moments of course when he was scared, despondent and tired of hanging on, but he always emerged from the bad moments more surrendered to the journey and they became resources and realisations to share with others. In the end, the best way I could support him was to ensure that he could die the way he wanted to; still serving others and constantly meditating on the Divine.

It’s been 3 years since JP left and I’m much less resistant to the painful memories. I’m learning to treasure them because they are part of our story and I want to remember and embrace all of it. As I continue to meditate on and describe the final, most difficult pages of our story, I know I will uncover the beauty and fullness of meaning in his passing. It will illuminate my life and I hope yours too.

Now, when I remember my husband’s life and death, I remember an inspiring story that had a beautiful ending.

taruni

Funerals and Birthdays


 
 
I don’t celebrate my birthday anymore, well not with a party surrounded by lots of laughing friends.

JP passed away on December 17th, 2 days before my birthday. Somehow, in the madness of activity that follows a death, his funeral was arranged by my well meaning friends and in-laws on my birthday. I actually didn’t even realize it until Lyn, my sister in law said to my father in law…”but it’s her birthday”.

I was so numb with shock and exhausted from caring for JP for months while cooking and managing our restaurant full time that I just said, “go ahead, I don’t care”. I didn’t care about anything at that moment, I just wanted to go to sleep and not wake up.

But then I remembered that JP had written me a letter. Actually, he had asked one of our volunteer carers to write it for him since he had lost the function of his writing hand. It had been lying on our coffee table for about a month and JP had told me that it was for my birthday and he made me promise not to read it until then. I grabbed that letter and started crying, staring at it like it was a message from JP from wherever he was, getting wet from my tears as I held it in my shaking hands, still folded.

The following day I went to the funeral home to get his body ready for the funeral. We brought his favorite clothes and I went through the motions. It wasn’t as hard as I thought it would be. I had helped my father dress my mom about 8 years earlier for her funeral so I knew what it was going to be like. The thing that surprised me was how peaceful I felt, how normal it felt to be with him even though it was just his body. For a moment, the pain went away and I almost felt like everything was back to normal. I could have stayed there all day and night and who knows, I might never have left if my friends hadn’t been with me to take me home.

All night, as I lay awake waiting for the hours to pass, I kept thinking about that birthday letter. I couldn’t wait for it to be my birthday even though I knew it was also funeral day. That letter was like a thread between JP and I, like some kind of ethereal messaging service that existed outside of the awful reality that he had left me and it confirmed we were still connected.

When we got the the funeral home I asked everyone to leave me alone with JP for an hour. I finally opened that letter and this is what he had written:

“Dear Taruni, Happy Birthday!

Thank-you for all you continue to do for me and if this ceases tomorrow,

I will still want you as my closest companion and pray that God will continue drawing us towards Prema (love) together.

Thank-you for helping me let go of unnecessary things.

Your servant and husband,”

Jagatpati

I sat there after reading the letter, holding JP’s hand and cried the most painful tears I had ever cried. I cried for his love that I wouldn’t feel again. I cried because his kind nature that always saw the good in everyone was gone from the world. I cried because I didn’t take more time to appreciate him when he was alive and to marvel at how this beautiful soul had become my husband. I cried because even though he was dying, he was thankful for what he had and wanted to express his gratitude to me before he left.

In the days, weeks and months that passed, whenever I got really low I would pull out that letter and read it again. It helped me to draw breath, to see the light out of my darkness and to remind me to also be grateful even in the midst of my pain. I read this letter and I see his cheeky smile and I am reminded that there will always be a connection between us, it exists in the forever of the spirit.

taruni

the ‘W’ word

There are plenty of terms used in everyday conversation that we are all familiar with and use as we talk, describe and label ourselves and others. Some complimentary and others not so nice. If you live in the outer suburbs of Australia where I grew up for instance, you’ll often hear the term ‘sheila’ which you should know if you ever plan to visit there is a friendly but demeaning term for any ‘Modern’ woman. I’ve been called a ‘Sheila’ many times and all sorts of nasty racist names growing up in the 70′s when Asian immigrants were flooding into Australia. So I’m pretty immune to labels. But then at 36, a new and completely foreign label was thrust onto me   –  Widow.

Now in my mind, this word conjures up images of elderly women, grey haired, slightly bent and wearing black garments, surrounded by grandchildren from a long and fruitful marriage; women at the tail end of their lives. So how could this be applied to me? Being Asian I looked considerably younger than 36, didn’t have kids, owned a successful business and was just finally maturing into the prime of my adult life.

When JP was diagnosed with a Brain tumour in 2006, after the initial shock wore off, I desperately searched for something positive to do to stave off the tidal waves of helplessness and confusion that were making me useless to myself and more importantly to JP. So, I gathered my strength and put all my energy into finding a cure, even though the brain tumour was pronounced as incurable and he was given only 6-9 months to live. When he hit 12 months however, after surgery, chemo and radiation therapy, I started convincing myself that he was going to be a medical miracle and would survive the brain tumour. And so I continued like a mad woman, possessed with unrealistic aspirations of finding a cure to save him.

Looking back, I can understand that I was in deep denial and that my frenzied attempts to find cures was a coping mechanism because I couldn’t face the awful truth that JP was probably going to die. I never for one moment contemplated life without him, what that would look like or who I would be without him.

About a week after JP passed, I was sitting alone in our bedroom when I heard the phrase, ‘I am a widow’ in my mind. Quietly out of nowhere it whispered at me like an alien voice pronouncing some horrible fate. I sat there for about an hour as the reality came crashing in, that this one word meant the end of my beautiful life, the end of the future that had seemed so rosy and worst of all, that I was alone and had no idea what I was going to do next.

What are widows like I wondered? I didn’t know any widows, I didn’t know how widows behaved, how they dressed or how they were supposed to be around people. As I visited with friends, I felt this label plaguing me silently, defining me and trapping me in a place I didn’t want to be. I felt like I was carrying a 50 pound poster around my neck like a condemned person. It marked me as an outsider in a world where everywhere I looked, I only saw couples in love, families, babies and everyone had a partner. It was a particularly awful time to be alone because JP passed away a week before Christmas which made me feel even more isolated; a sorrowful widow at a time when the whole world seemed to be giving thanks for family connections, reminiscing about the year about to end and making plans for the new year.

I yearned to be like them, I wanted to be able to look forward to my future. My heart ached for JP and for the person I used to be, spirited, determined, focused and filled with enthusiasm and plans.

Time of course helps you to get used to anything. Eventually I realised that being a widow meant that I was living ‘that’ future which I  had dreaded for nearly 3 years while JP was sick. As the phrase goes, fear of something is worse than the thing itself. So, here I was, surviving from one day to the next, slowly getting used to a new life and making progress towards thinking about my future.

Now, 3 years on, this word has become rich with meaning for me. I don’t hate it anymore and that poster around my neck has transformed into something like a badge of honor in my mind.  That day when I heard the voice in my head was a turning point in my life that forced me to deal with my fear of the unknown, of deep emotional and psychological stuff I hadn’t been aware of or had never made the time to really figure out. It began my journey of grieving and also of healing.

The sorrow, regrets, guilt, remorse and all of the overwhelming emotions that come up when someone you love dies, have transformed and become much less debilitating. I have learned to forgive myself, to not be afraid of feeling bad, angry, out of control and of not knowing what the future holds.

I am grateful now that ‘widow’ has been added to my bag of labels. It has deepened my understanding of life in so many ways so that I am a little less selfish, a little more compassionate and stronger the way bamboo is strong during a hurricane; bending and swaying with the hurtling wind but never breaking.

Becoming a Widow has been the making of me.

taruni

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